拥抱所有的“自闭症”
作为一个社区,我们需要拥抱所有的“自闭症”。
由Kim McCafferty |2020年8月17日这是Kimberlee Rutan McCafferty,作者和母亲的帖子,以及在费城儿童医院的自闭症频谱和自闭症家庭合作伙伴(Choc)的儿童医院。金也是一个人的作者博客关于她的两个患有自闭症的孩子。
I’ve been reading blogs about autistic kids for going on seventeen years now, and I have seen every opinion and topic covered during that time from potty training to aggression, to the “has autism,” “is autistic” debate, to whether bloggers should be writing about their kids at all.
我已经阅读了激起的评论敦促妈妈和爸爸“假设能力”,而不是写下会让他们的孩子难堪的主题。我有读评论响应,他们的孩子永远不会理解父母的想象的内容,并且读者需要发泄当天。
我是一位博主,曾经写过她严重的自闭症儿子十年。我的男孩,我爱的人,谁爱我,过去一直是侵略性的。我已经写了一些实例,但大多是让他们自己。我更愿意写下他的胜利,并将提示传递给其他父母,以帮助他们导航自闭症世界。
The truth is I have chosen this path in part because it didn’t feel right to me to share that side of him, as it is not representative of who he is at his core, or how he predominantly acts at home, in school, or in the community. I also chose not to share to protect him. Anyone could read my blog posts and have a negative attitude toward my son, and that is the last thing I’ve wanted or would ever want. He is a loving, kind boy, and deserves to be perceived that way.
我没有选择不写他的剧集,因为他可能会在他的互联网搜索中遇到它们,并被我写的东西吓坏了。
贾斯汀是自闭症,具有高支持需求,非智力和智力残疾。这并不意味着他不是聪明的。当我的儿子是他的三个治疗师指出我的时候,他能够阅读,我举行了持怀疑主义。毕竟,我是老师,当然我会注意到?他只有三个。当他不能说话时,她怎么可能知道这个?
她知道因为当她拨出一系列十五码卡并要求他指出每一个单词时,他做得非常完美。
他一遍又一遍,又一遍。
我的儿子有一些精彩的分裂技巧。他读取的能力,它在一年级达到达到达到达到达到的级别,使他能够在整个年内做一些学术工作。它还允许他伟大的设施与Edmark,他在家和学校使用的阅读理解计划。At a certain point he plateaued at about the level of a six-year-old, and yet I have never been more grateful that we could read young children’s books together, that he could do some work, and most importantly, navigate a computer so that he could do his Google searches to his heart’s content. He is able to play a number of games on the computer, and when we recently had to switch to a new browser with different steps necessary to open it he went with the flow like a champ.
然而,如果我读到了我的一个博客帖子,他就不会理解它。我肯定是他的母亲,作为一名退伍军人的教育者,他在过去十四年的工作中他已经在学校工作。
我知道某个地方的人正在思考“假设能力”,我会回应我的回应。但是,我意识到他的极限。我在他们内部工作,并不断推动他所有发展领域的界限,以便他可以成为他最好的自我,但我知道何时何种尊重他是谁。
事实上,他有限制其他神经典型的十七年龄的事实并不让他不如他们。
对我说“假设能力”是什么意思它意味着我的儿子里面的某处是一个近似男人,可以理解“典型”水平的写作和复杂的命令,这不是真的。他不能,那没关系。它也意味着我,如果他没有这种高级的理解水平,他就会缺乏缺乏,我的儿子里面有一些东西。
而这一点,我可以用绝对的确定性说,无法脱离真相。
作为一个社区,我们需要拥抱所有的“自闭症”。我们需要认识到他的同伴几乎无法区分,他对明星战争的了解是一个非常了解的同伴。我们需要了解并支持成年人和具有侵略性的成年人的父母meltdowns and self-injurious behaviors and intellectual disability. We need to see the girl-in-between-worlds, who can mainstream to a point and knows she’s different and may never live independently. We need to acknowledge the boy who is non-verbal and seems to reside in his own world but has typical intelligence.
我们需要拥抱它们。
我们现在需要这样做。