遇见Daniel T.

丹尼尔T.

如果我们可以从丹尼尔学习任何东西,那么每个人都可能面临问题和挣扎,但及时,你可以用正确的支持系统克服它们。对于帮助我们沿途的每个人来说,我们不能更感激。
光谱聚光灯:达到丹尼尔T.

随着GlobalData,表明,由于患有失业者的绝大多数成年人,常驻凯瑟琳Toops的Dubuque都是失业的或已于部署的,Dubuque,凯瑟琳Toops知道帮助她的自闭症儿子丹尼尔找到有意义的工作,因为成年人会带来挑战。

在1999年在1999年诊断为三年,丹尼尔或“托普”作为他的朋友们称他,在他的生活中面临着许多挑战;拥挤的房间,响亮的声音,不对称的模式,意外的变化,了解社会协议以及使用单词的无法沟通只是他所面临的一些障碍。早期干预服务和多年的疗法帮助减轻了丹尼尔的一些斗争,但凯瑟琳总是担心她的儿子达到他的全部潜力是不够的。所以,像大多数关怀的父母一样,当他们的孩子的未来是贫穷时,她会见了他的老师,为互联网挑战了资源,并制定了一个行动计划,以找到她的儿子是理想的工作。

“丹尼尔的个性化教育计划(IEP)队于2014年5月举行会议,在他的高中,”凯瑟琳分享期间开始过渡计划。“该团队最初努力寻找一个工作经验,因为他的自闭症,强迫症和无法与文字沟通,这将是一个很好的工作经验。我离开了会议,感到非常沮丧,知道我不得不把东西拿走自己的手。“

对于凯瑟琳来说,这种挫折和忧虑引发了一个想法 - 照亮丹尼尔和其他成年人的途径,以找到有意义的就业。

“在会议结束后,我开始在互联网上搜索丹尼尔可以在遵循图片计划和任务卡时完成的工作活动。我汇总了三个不同的工作,他能够完成使用这些卡片。首先是制造自制的洗衣洗涤剂。丹尼尔很容易制造产品,但我们没有出售的出口,所以我们将肥皂捐赠给女性的庇护所。第二个是将羊毛毯子捆绑在一起。不幸的是,丹尼尔对这个过程并不是很感兴趣,只是笑着看着我和其他成年人自愿帮助这个项目。第三个和最终选择正在制作火灾初学者,这是一个即时成功!丹尼尔在这项活动中表现出色,因为该过程有很多步骤,这对他有吸引力。“

光谱聚光灯:达到丹尼尔T.

JT Firestarters.由当地社区捐赠100%回收材料制成。每次火灾启动器都是由纸板夹纸盒,切碎的纸,烘干机棉绒和熔化的蜡烛蜡制成。纸条被切碎,标签放在袋子上,蛋纸箱分开,然后装配过程开始。使用一个起点和结尾点清楚地定义了工作步骤 - 丹尼尔的理想任务。

2015年6月,JT Firestarters收到了70袋的第一个订单。从那时起,业务已经蓬勃发展,因为该产品现在在整个七个州的130家商店销售。丹尼尔的妈妈将业务的成功归功于他们当地社区的丰富支持和职业康复的企业补助金,为首次提供企业主的基本工具来启动和运行。凯瑟琳说,JT Firestarters正在增长,她希望他们很快就开始雇用付费员工,并在具有有意义的工作中提供别人的频谱。

“我们为丹尼尔感到骄傲,因为他是谁以及他所取得的成就。 He has worked with his job coaches for the past five years to make JT FireStarters the success it is today. If we can learn anything from Daniel it’s that everyone may face problems and struggles, but in time, you can overcome them with the right support system. We couldn’t be more grateful for everyone who has helped us along the way.”

通过他妈妈,凯瑟琳的话来了解更多有关Daniel及其自闭症的旅程,在这Q&A中:

什么刺激你让丹尼尔诊断为自闭症?

丹尼尔没有让目光接触,而不是说话而不是回答他的名字。

当他被诊断出来时,首先想到你的头脑?

老实说,我无法相信丹尼尔有自闭症。  This was not supposed to happen to us.  He was the first child with a disability born to our families (including extended family members). His diagnosis was VERY difficult to accept. 

在您收到诊断后,让您的儿子服务和支持的后续步骤是什么?

在他的诊断后,丹尼尔在早上和下午开始了3岁的幼儿园。  He had additional outside therapies for speech, occupational therapy and physical therapy.  Our life was filled with appointments.

光谱聚光灯:达到丹尼尔T.

请分享丹尼尔因自闭症犯的一些东西。

多年来,我们面临着丹尼尔的挑战。 He did not like loud sounds, and he would NOT go into public bathrooms that had hand dryers.He did not like eating in crowded restaurants. He would crawl under the table. Consequently, we stopped eating in restaurants for a few years. In high school, Daniel thought the lunchroom was an "all you can eat buffet."  The lunch ladies were not amused to say the least. Daniel had a phase where he would turn on water faucets and let the water run. This was short-lived thankfully. In his late teens to early 20s, Daniel wanted people to dress symmetrically. This took quite a while to overcome. 

现在,丹尼尔喜欢例行和可预测性。  He struggles with change. He is not able to vocalize his needs. Family and staff must read his body language and gestures. He has had access to a multitude of communication systems, but Daniel is reluctant to use them. 

请分享他擅长的一些东西。

丹尼尔擅长拼图,模式和寻找无序的东西。  Lately, he has adapted well to change.

光谱聚光灯:达到丹尼尔T.

您是否觉得自闭症的人可以访问与神经典型人的工作机会相同?

丹尼尔可以获得就业机会,但很明显他不会成功。他可以申请许多工作,但他不会被雇用。  I feel that our society is just at the beginning stages of hiring people with disabilities. It is easy to fill a job if the employee requires a few accommodations, but it’s challenging to find a position for someone with multiple physical and/or sensory needs.  We (parents/advocates) need to hear about success stories of others who have paved the way in employment. As a parent, I often feel as if I must work twice as hard to accomplish something for Daniel. 

什么方式工作市场和工作场所可能更具包容性,并与患有自闭症的人提供?

在爱荷华州的状态下,残疾人需要更多的职业教练。  Hours are capped and individuals are only able to work 2.5 hours per day.  This is not acceptable.  People who can work should be allowed to work more hours.  People are worth the financial investment and can be productive members of society, even if accommodations are needed.

您将向其他人提供哪些建议,该社区准备开始求职或准备进入劳动力的职位?

阅读本文寺庙祖母。你有什么兴趣和技能?  What do you enjoy doing?  Market yourself.  Think outside the box.  Have an advocate assist you in your search. Accept advice during the interview process and have your advocate monitor your progress at work.  Make sure your advocate helps you navigate the challenges and obstacles that may hinder your success at work. Employers and co-workers must be educated about the needs of individuals with disabilities. Work breaks may look different for neurotypical individual – some need a break to take a walk or drink coffee - people need breaks for different reasons. The goal of employer and employee should be to tailor the work environment to best meet the needs of all involved. 

最能描述你儿子的五个词是什么?

勤劳,聪明,持续,驱动,祝福

上面共享的故事代表了突出显示的个人的经验,观点和观点。我们的目标是在整个频谱和整个寿命中分享故事,但我们网站上提供的信息不是任何资源,治疗方法或服务提供商的建议,转介或认可,并且不会取代医疗,法律或或者的建议教育专业人士。

我们在这里帮助我们聊天
自闭症反应团队聊天
目前没有可用代理商。

您还可以通过电话或电子邮件到达自闭症响应团队:888-288-4762,en Espanol 888-772-7050,或help@autismspeaks.org.