遇见科迪,科尔顿和麦田

科迪,4,科尔顿,4岁,玛德琳,9

Cody,Colton,Mendelyn

我的名字是纳粹。我的丈夫,科迪,我有五个孩子从4到18岁,包括三联男孩,科迪,冒康和贾克逊。4岁的Cody和Colton都是自闭症,也是我们的女儿,Mendelyn,9岁。我们18岁的安德鲁和三胞胎三分之一,Jaxon,不在频谱上。

当我发现Madelyn有自闭症时,它并没有令人惊讶。我已经有一种感觉将是诊断。 I knew I had a lot to learn, and I can’t begin to tell you the amount of research I did when we got the official word. I wasn’t scared or intimidated - I just wanted more knowledge. It was a feeling of “okay, let’s do this.” When my sons were diagnosed, I knew they would have more challenges. I still felt like I could handle it, but I wasn’t sure how since I knew kids on the spectrum need a lot of time and energy devoted to them.

玛德琳(Madelyn)被诊断出了5岁。当我们注意到她在学校的简单任务之后遇到困难时,我们对她进行了测试。我还注意到她是一个安静的孩子,除非她重复了自己最喜欢的卡通米奇老鼠的短语。 Now I know that’s referred to as “scripting,” which can be seen in children with ASD.

Cody和Colton.

就男孩而言,我怀疑他们很小的时候就可以在频谱上。我注意到其中两个三胞胎的科迪和科尔顿总是24/7弹跳。我也一直关注重复行为。当讲话延迟时,我们看到三人的第三名贾克森(Jaxon)比其他两个人扮演并参与了更多的比赛,我设定了对他们进行测试的约会。他们最终在2岁时被诊断出。

自诊断以来,Madelyn已接受应用行为分析(ABA),职业治疗(OT)和语音疗法。男孩们收到ABA和OT - 他们还没有准备好演讲治疗。

早期干预是关键的关键,当您有理心的人。 The boys have had to change providers a couple of times because we found their services did not work for our boys for one reason or another. We have since ended up with great behavioral therapists that have helped the boys tremendously.

与妈妈一起在这个问答中了解有关Madelyn,Cody和Colton的更多信息:

您对最近被诊断出自闭症的儿童的其他父母会给哪些建议?

不要恐慌,做你的研究。 Depending on the circumstances and level of support needed, it is okay and appropriate to grieve the life you thought your child would have compared to the one he/she may actually be living. I had to realize my kids would not play team sports, may never talk and may never get married, and that makes me sad. But there are so many other wonderful things they will do that will make you smile and make you so proud.

自诊断以来,您如何学会为您的孩子倡导?

倡导是很大的,因为您是孩子的声音,并且知道最适合他们的声音。一些治疗师可能对您或您的孩子没有正确的背景或气质。 It is okay to speak up. Oftentimes, I questioned myself because I didn’t want to come off as too aggressive or pushy. I know services are limited and sadly, there can be a shortage of qualified therapists and workers in the autism field. Don't ever be satisfied with services that are just "good enough.” Speak up and don’t settle. You will see the difference in your child when you find the right service provider for them and your family.

是什么让你为你的孩子感到骄傲?

我的孩子们是惊人的小海绵,从最小的东西中获得欢乐。 No grand gesture is needed for my kids to be happy and excited. They don’t need Disneyland or a vacation to be happy. All they need is an open field of grass and lots of tickles. They work hard every day and although they have bad days, they are always moving forward and will try the task again tomorrow.

最能描述Madelyn,Cody和Colton的五个词是什么?

Madelyn:甜蜜。美丽的。有趣的。关怀。愚蠢。
科迪:快乐。简单的。饥饿的。惊人的。冷静的。
科尔顿:火热。决定。超。挑剔。知道他想要什么。

上面分享的故事代表了突出显示的个人的经验,观点和观点。我们的目标是在整个频谱和整个生命周期中分享故事,但我们网站上提供的信息不是任何资源,治疗方法或服务提供商的建议,转介或认可,并且不会取代医疗,法律或或者的建议教育专业人士。

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您也可以通过电话或电子邮件与自闭症响应团队联系:888-288-4762,EN ESPANOL 888-772-7050或help@autismspeaks.org